The family of a young boy with a rare genetic condition have nominated him for the Croydon Champions child of courage award - as new research is found that could extend his life.

Brae Sewell, 4, of Purley, was diagnosed with Ataxia-Telangiectasia (A-T) 14 months ago, a genetic condition which causes severe disability in children and significantly shortens lives.

Children with A-T are unlikely to live beyond their 20s.

There is currently no effective treatment for the condition and Brae’s diagnosis means that his mother, Siobhan Kelly, faces an increased risk of developing breast cancer as a carrier of the gene.

Now, researchers in Cambridge are to begin a project which could both extend Brae’s life significantly and protect his mother from breast-cancer.

The team, headed by Professor Steve Jackson, is planning to use state-of-the-art genetic technology to test a new approach to treating A-T and hereditary breast cancer.

Tests have already shown promising results in the lab.

The family have just returned from trip to Florida courtesy of the Make A Wish foundation, a charity which grants wishes to children with life threatening conditions.

Hundreds of Brae's friends and family have raised thousands of pounds for the charity.

Miss Kelly said: "The A-T Society has been a lifeline for us. They helped us understand the reality of the condition and with their help we are starting to move forward.

"The project they are funding with the Thomas Appeal means there is a light at the end of the tunnel and real hope for Brae and other children like him."

Brian Sewell, Brae’s dad, said they are happy progress is being made, not just for Brae but for all the children who suffer from A-T.

He said he was nominating Brae for the Child of Courage award because he was carrying on living life to the full despite the uncertain future he faces.

Mr Sewell also single out Dr Ritu Handa, from the Asthma department at St Helier Hospital, who the family say has gone beyond the call of duty to help Brae on numerous occasions.